Sedona AZ (September 12, 2012) – The Sedona City Council approved a proclamation recognizing September 16, 2012 through September 22, 2012 as Mitochondrial Disease Awareness Week. Accepting the proclamation were Sedona Police Officer Casey Pelletier, his wife Marin, and their daughter Kinsley who has been diagnosed with Mitochondrial Disease. Kinsley has a three year old brother, Landon.
Following Mitochondrial Disease Awareness Week on September 23, 2012, there will be a Baby Kinsley’s Benefit Concert from 4:00 p.m. to 7:30 p.m. at the Sedona Performing Arts Center. If you are unable to attend, donations to benefit Kinsley can be given on line at SaveBabyKinsley.com. (photos from website)
Mitochondrial disease is a chronic, genetic disorder that occurs when the mitochondria of the cell, which are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth, fail to produce enough energy for cell or organ function and whole systems begin to fail and life is severely compromised.
It is estimated that one in 4,000 babies is born with mitochondrial disease although mitochondrial disease can cause symptoms at any age and compromise affected individuals’ lives significantly. No cures currently exist for mitochondrial disease, but early diagnosis can help patients and their families use proper medication and nutritional supplements to improve the quality of life and even prolong life.
Benefit concert tickets may be purchased in Sedona at the Mary D. Fisher Theatre box office, Hyatt’s Sound Bites, Goldenstein Gallery, and Weber’s IGA in the Village of Oak Creek. Tickets may be purchased in the Cottonwood area at Country Bank, 597 East State Route 89A, Randalls Restaurant on SR 89A, and Vinnies Pizza. The Sedona Eye is donating the SaveBabyKinsley Benefit Concert ad on this website, and is offering a free one month on-line advertisement to businesses gifting $1500 or more in cash to the Save Baby Kinsley fund during Mitochondrial Disease Awareness Week, September 16 through September 22, 2012. Contact Ads@SedonaEye.com for details and rules to claim free advertisements.